Saturday, May 22, 2010


I'm am having a lazy day today and it's not MS related. My belly has been really unhappy lately and I decided that it needed to stay home and rest.

Way before MS diagnosis, I was diagnosed with Ulcertive Colitis (UC) I was still in college and I thought it was the worst news ever. I've learned to manage that disease quite well over the years--sometimes with medication and sometimes with nutrition and alternative therapies like Reiki and acupuncture. For the last several years, it's been all about diet although I did mention my belly when I received cranial sacral therapy last week. For the most part, I've been UC medication and UC symptom free. Maybe that's why I got complacent.

I don't know if it's age or what but my body seems to be more and more sensitive to what I eat. I learned early on that dairy was not a good thing and I gave it up. Very, very occasionally, I would indulge in cheese or ice cream and I would immediately suffer from UC symptoms. But now, it's also sugar and maybe wheat, too. So, my decision to start my day yesterday with a coffee (with milk) and a muffin was probably not the best decision. I've been paying for it every since. It doesn't help that I had licorice earlier in the week, I'm sure.

UC symptoms are bad enough but what comes later is almost worse. The symptoms really, really sap my energy. It's not unlike MS fatigue except that I feel as if zombies have invaded my body and sucked out all vitamins and minerals. I don't think I actually am paler but I feel paler and sort of fragile. I'm kind of a bad ass and I hate anything that makes me feel fragile.

So, here I am...lying on the couch, pale and fragile and pissed off. But I also have a new resolve to be kinder to my belly. It is, after all, part of the one body that I have, love, and need to live in for the rest of my life. I slept for about 10 hours last night (with a few interruptions from my cat scratching at the door this morning), I ate scrambled eggs and spinach for breakfast, and now I'm listening to NPR and thinking about an 80s party I'm going to later. I am resting. I am resolving.

“Sometimes the most urgent thing you can possibly do is take a complete rest” ~Ashleigh Brilliant


  1. it sounds like you're sick of being sick...which I TOTALLY get. Hang in there and feel better soon!!

  2. yeah, sick of being sick. i'm tired of resting - as valuable as it may be.

  3. Spinach and eggs for breakfast!! ME TOO~
    My niece was just DX with UC...hard to get her out of her room.

  4. ms and uc...i'm SO sorry, i have ms, & that's hard by itself, you are so strong to have to deal with both at the same time! good luck with it all, but doesnt it SUCK to HAVE to rest sometimes??

  5. Love the quote! Cranial sacral therapy? Yeah, Julie! Finally here catching up w my dear friend. Will call you next week (on vacation and #1 plan is to catch up with you and Val). Hope the BBQ went well! -Laura