Tuesday, October 27, 2009

Seats Still Available!

Fashion Plates

Real women, real stories…all for a good cause!

Please join us at

Fashion Plates
A Luncheon and Fashion Show

to benefit the Central New England Chapter of the
National Multiple Sclerosis Society

Treat yourself to an enjoyable afternoon of food, fashion and fun!

Join us on
Friday, November 6, 2009

Sheraton Boston Hotel
Grand Ballroom
Boston , Massachusetts

Individual Seat: $100
Tables of 10 Seats: $1,000

For more information on Tickets, please view the event website

Presented by:

Lord & Taylor
Sheraton Boston Hotel

National Multiple Sclerosis Society
Central New England Chapter
101A First Avenue , Suite 6
Waltham , MA 02451-1115
tel: 1 800-344-4867
fax: 1 781-890-2089

Monday, October 19, 2009

The Vlog is Live!

I'm thrilled to give you the link to the How I Fight MS blog which is live today. This is why the NY hipsters came to my house.

I have to admit, I'm feeling a little shy. When they filmed me, I thought I was being incredibly profound and that I was the sexiest 45 year old with MS that I knew (in my house anyway). Now that I see myself in the video, I realize that I am just my usual kinda cute and kinda goofy me. I do feel like this IS me, though, which is kind of the point, right? Be my authentic self, share my experience, strength, and hope about what it's like to live with MS and hopefully help someone else in the process.

I hope you will subscribe to the entire blog or just my section (although you will miss out on the awesome stories of my fellow vloggers on the site). To see future videos, you have to opt in to receive mail from the drug company, but you do have the option to opt out later. Also, please let me know if there is something in particular you would like me to blog about in future videos and journal posts. Blog on, babies.

Sunday, October 11, 2009

The Bad Patient

I think chronic illnesses should be given to people who are good patients. I am not a good patient. I have trouble keeping up with my various prescriptions, communicating with my insurance company, remembering my doctor's and testing appointments, getting referras before the actual appointment and all the rest of it. I am way too disorganized to have MS.

But I guess it's not just the medical stuff. Would I say I shouldn't be able to spend any money because I don't manage it well? Should I not be a mom because I'm flaky with the school papers? The fact is, I suck with all matters that require disclipline. It's not unheard of for me to pay my bills late, lose school papers, and space an infusion appointment until the day of. It's a situation of my own making. I am not a trust fund baby and I'm supporting my two children and myself on my income alone (unless you count the paltry sum of child support that X pays each month), but there are people with less who get it done and pay all their bills on time.

Is it possible for a leopard to change its spots and become a disciplined person? Or am I doomed to a life of last-minute lunch making, expired prescriptions, and telephone calls from creditors?

Tuesday, October 06, 2009

I'm Walking the Runway Again!

I'm thrilled to report that I will, once again, be an MS model in the Fashion Plates luncheon fashion show to benefit the Central New England Chapter of the MS Society. It's on Friday, November 6 at the Boston Sheraton Hotel. If you live in the Boston area, I hope you will consider supporting and attending this event. Click here or on the image above to learn more and/or purchase tickets. It's a really fun time with good food, nice clothes, and it's to support a great cause. I would, of course love to see you and be seen since I rarely look this put together! :-)

Click here to see the photo slide show from last year's Fashion Plates event, once again proving that women with MS can be damn sexy.

If you don't live in the Boston area or you can't come to the event, you can still provide support. The organizers are looking for donated products, services, or gift certificates for products or services to go into the raffle baskets. If you are interested in making a donation of some kind, please let me know via the comments section or email me at LazyJulie@gmail.com and I will connect you with the proper people. Or, if you don't want to go through me, please send donated items (by October 30) to:

National Multiple Sclerosis Society
Central New England Chapter
101A First Avenue , Suite 6

Waltham MA 02451

ATTENTION: Kara Kelley