Thursday, May 20, 2010

Good MS News from Head to Toe

I don't personally experience foot drop or any other MS symptoms that affect my ability to walk (thank God), but I was very touched by this woman's tears of gratitude at the end of this video. I can only imagine how amazing it must feel to return to an earlier mobile state. Why on earth is this not covered by this woman's insurance company???!!!

This video was recorded by a fellow MSer who has done a ton of research about soon-to-be released oral MS drugs. Very exciting news. I would LOVE to stop self injections.

I heard about this last video (MS and Sex-Part 1) before I ever saw it. (There's also an MS and Sex-Part 2 that may be helpful for people who experience pain, spasms or cramping.) I am so glad that this woman was brave enough to record and post this honest account of how MS affects her sexually and how she refuses to let it keep her from fully experiencing pleasure. While I don't personally experience any "intimacy" issues with MS, I enjoy sex immensely so I can appreciate that this would SUCK HUGELY. I will give the same warning that the woman gives at the start of the video: If you don't want to hear some pretty explicit talk about sex and female genitalia, do not watch it. And, on a side note...whether or not you experience numbness issues and want to try some of the devices she suggests, I would HIGHLY recommend Good Vibrations (for mail order) and Athena's by Laurie (for hosting a really fun Tupperware-type party with your friends).

What about you? Do you have any good MS news to share?


  1. Hi Julie,

    I met Marlo (from the sex video) just 2 weeks ago in Switzerland. She's very sweet and genuine in person. Originally from New York but London all the way now. Also the author of "Awkward Bitch: My Life with Multiple Sclerosis." I've yet to get my hands on it to read, but planning on it. Hope she continues to do videos on occasion.

    Now with my lovely cervical lesions, I've got all sorts of issues with legs, arms, mobility, bladder, and sex. All sorts of fun MS stuff, plus a good share of visual disturbances. MS really is the bitch sometimes.

    Check out my twitter @LisaEmrich to see what I was up to today.

  2. Sorry you aren't feeling well, Lisa. When you are done with your drips (read your Tweets from yesterday, I think), I hope you get to find some fun--maybe following the advice of Marlo. :-) What were you doing in Switzerland? I'm very jealous--of the travels and the meeting.
    Lazy Julie