Monday, October 19, 2009

The Vlog is Live!

I'm thrilled to give you the link to the How I Fight MS blog which is live today. This is why the NY hipsters came to my house.

I have to admit, I'm feeling a little shy. When they filmed me, I thought I was being incredibly profound and that I was the sexiest 45 year old with MS that I knew (in my house anyway). Now that I see myself in the video, I realize that I am just my usual kinda cute and kinda goofy me. I do feel like this IS me, though, which is kind of the point, right? Be my authentic self, share my experience, strength, and hope about what it's like to live with MS and hopefully help someone else in the process.

I hope you will subscribe to the entire blog or just my section (although you will miss out on the awesome stories of my fellow vloggers on the site). To see future videos, you have to opt in to receive mail from the drug company, but you do have the option to opt out later. Also, please let me know if there is something in particular you would like me to blog about in future videos and journal posts. Blog on, babies.


  1. Your feeling shy in those videos?! You're Fabulous! I love your style and outlook on life with MS. Glad I found your blogs! :)

  2. Hi Julie,
    I am surprised and sad at you, Jen and Kimberly and Lisa working with a pharma company.
    Would not be my choice.
    I am afraid I do not like the new website at all, the music is irritating and detracts.
    Feel all of you lose intergity by joining a pharma company.
    Will you still be writing here, hope so, as I will not be visiting your new site.
    Good l uck.

  3. Herrad,

    You are, of course, entitled to your opinion. One of the things I love about the MS Blogosphere is that we are all so different. To me, getting paid to tell my truth and not having to directly pitch a drug is all good. I will keep this blog, too, in answer to your question.

    The How I Fight MS project--that I fully and completely support--is a side project. To me, this is an example of a drug company that is trying to do the right thing by hearing from real MSers about their real experience and not scripting us to say how great a particular drug is. They do, since they are paying us get to give a thumbs up or down to what we video tape or write but so far, they have accepted all my weirdness. Since I'm keeping this blog that requires no green lights from anyone else, I don't feel like my voice will be silenced at all.

    As my grandmother likes to say, "To each his own, said the lady as she kissed the cow"

    Lazy J

  4. Hi Julie,
    Totally agree with your grandmother. Like yoyu I too love the fact we are all different, yet a big bond is there too.
    AS you explain it, the blogs sound very good idea.
    What worries me it that the companies big interest is peoples details to fill their database.
    As the only way to read is to subscribe, shame.

    Good luck with the project.

  5. Hi Julie,
    Just left this on Lisa's blog and wanted to say the same to you.

    Think I was abit too quick to react.
    Forgot that a response is ok but that I do not always have to react right away.
    Sorry for being so critical especially as I did not know all the facts.
    Can see now that your intentions are good and can also see that this could be of vital importance to people looking for help and advice.
    Can also see that it is everything to do with being a window for non blogging MSers.

    Success with your venture.

  6. JULIE! You didn't tell me about THIS. This is awesome. How did these folks find you? Also, you've always reminded me of one of those gals on Sex in the City -- I dont know her name, but I'll google that (too -- thank gawd for google) and get back to you. And here, too!

    You make me a better man. Uh, you know what I mean (you had me at hello ... NO!)... You are -- in all seriousness -- awesome beyond words. Your friend for-evah... Jill

  7. Julie: you look amazing and I'm actually PROUD of you guys for what you're doing. I speak to MS groups, and yes, Biogen Idec funds my engagements, but I too, don't speak to endorse a single drug or manufacturer. If you do it RIGHT -- like you guys are doing, it's definitely something to be proud of. I'm looking forward to following your story in both places. Great job! Sunshine

  8. Let's get to the really important stuff: you look fantastic!!

    A distant second - the content is great. You are smart, funny, well-spoken.

    Do you have an agent?

  9. Everyone--THANKS for your support and kind words.

    Jill--Lova you back, my friend, always and forever.

    Tim--No agent yet. ;-)

    Lazy J