tag:blogger.com,1999:blog-2747230250579415057.post9078421595583150592..comments2023-08-18T04:28:00.494-04:00Comments on Maybe I'm Just Lazy: One Woman's Journey Through MS and Life: Another Cure!Julie M. Bakerhttp://www.blogger.com/profile/13202264108356942158noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2747230250579415057.post-88772713654935187542010-03-30T10:30:42.288-04:002010-03-30T10:30:42.288-04:00She does not email or text much less blog. :-)
I ...She does not email or text much less blog. :-)<br /><br />I write from the same school of thought as Natalie Goldberg (Wild Mind and Writing Down the Bones) and Anne Lamott (Bird by Bird and Operating Instructions) so, although I try not to be intentionally hurtful, I also try not to censor myself. I can't get to the stuff that really matters--the sometimes gritty, really REAL stuff if I Julie M. Bakerhttps://www.blogger.com/profile/13202264108356942158noreply@blogger.comtag:blogger.com,1999:blog-2747230250579415057.post-27964093153524564642010-03-27T20:50:31.509-04:002010-03-27T20:50:31.509-04:00Lets hope she doesn't blog also without tellin...Lets hope she doesn't blog also without telling you or have in her reader MS blogs such as yours in case her love for you means she looks for things to help by reading blogs associated with your illness otherwise her feelings might be quite hurt.<br /><br />I understand how you feel and have had similar experiences - suffering from a rare connective tissue disorder means I get a fair few Acheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.comtag:blogger.com,1999:blog-2747230250579415057.post-8708890291467141362010-03-26T12:24:28.562-04:002010-03-26T12:24:28.562-04:00You are all, of course, quite correct. My cousin l...You are all, of course, quite correct. My cousin loves me very much and just wants to help. And please know that I said thank you very much and did not express any of what I wrote here to her directly. This is just the place where I CAN say all that and I know I will feel better.Lazy Juliehttp://lazyjulie.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-2747230250579415057.post-65642294655399187642010-03-26T09:51:25.007-04:002010-03-26T09:51:25.007-04:00I do get them sometimes, but I try to remember the...I do get them sometimes, but I try to remember they are well-meaning. <br /><br />I just WISH for a real one. I mean a real, honest to God cure. Then anyone that wants can sent me the info!!! :)~Erin~https://www.blogger.com/profile/16710412631383800874noreply@blogger.comtag:blogger.com,1999:blog-2747230250579415057.post-44038368014532717092010-03-26T05:13:13.809-04:002010-03-26T05:13:13.809-04:00All in all, people just want to be helpful and to ...All in all, people just want to be helpful and to let you know they are thinking about you. <br /><br />I had one friend who called me every time she saw something on BBC news about other countries discovering "cures" for MS or treatments for MS. <br /><br />If you've never watched BBC, it is amazing what we never hear about in the United States because our news is so filtered - Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2747230250579415057.post-76332948624770464692010-03-26T03:49:01.516-04:002010-03-26T03:49:01.516-04:00OMG. When I was newly diagnosed, back in the paleo...OMG. When I was newly diagnosed, back in the paleolithic, I would get these 'recommendations' quite often. I learned to smile and say thanks for thinking of me, and I'll run this by my doc at my next visit. The subject was always dropped and never brought up again - bu either of us. Believe me, I feel your pain.Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-2747230250579415057.post-23642532697678817082010-03-26T00:17:47.125-04:002010-03-26T00:17:47.125-04:00Julie,
Not often have I had this come up, but thi...Julie,<br /><br />Not often have I had this come up, but this week it did. My mom always sends me links from things--typically I've heard of them, but my dad called me after hearing a show on NPR. It was about hookworm and MS....curing it that is. Maybe they were both listening to the same show??<br /><br />Hang in there!GGhttps://www.blogger.com/profile/04025520247766508506noreply@blogger.comtag:blogger.com,1999:blog-2747230250579415057.post-92070540108312141502010-03-25T23:30:07.059-04:002010-03-25T23:30:07.059-04:00julie, dam, i feel your pain SO much...but remembe...julie, dam, i feel your pain SO much...but remember, we are adults now...so just bite your tongue, nod, & smile (grit your teeth if you hafta?). i've thought about this a lot, & unbelievably, people just wish so bad that they could FIX you. most of the time they have the mental thing going on that's almost 'survivor's guilt', you know...like there but for the grace of Libbyhttps://www.blogger.com/profile/04873518747021842739noreply@blogger.com